It is only chocolate pudding.
But tonight, it was food for the soul.
Especially for this mama, knowing this kid doesn't usually eat very much very often.
The only thing I did differently was put it in a fancy glass. Go figure. :)
Check out the lip closure on the spoon! I am totally sharing this picture with our speech therapist. We have been working on this for months...
I don't even care if he got it on his pajamas...
Man, I love those eyelashes. :)
We have been struggling here with some people not having a lot of understanding about all that we do to work with him and how long the process of weaning off a feeding tube is going to take. Why we need to be at home certain times of the day because he needs to plugged into a feeding pump and we just can't make it to every sport game under the sun within 50 miles. Why we just don't go on vacation that much and our days out of town revolve around doctor appointments and feeding clinic visits. Why I don't work at least part-time because there isn't a daycare in town that will take a kid with a feeding tube (never mind the fact that I teach piano lessons, sell 31 products, babysit and I want to be a stay-at-home-mom and Jared wants me here, too). Unfortunately, Jared deals with the brunt of this pressure, along with the normal pressures of being in the ministry.
I understand from the specialists we work with that we will still be begging him at 8, 12, and 18 to keep eating and put just one more bite in his mouth. I'll always be counting calories and looking for healthy, high-caloric foods so we get more with every bite. We are in this for the long haul.
In total, he ate a good 6 or 7 spoonfuls tonight.
Tonight was a break through and it gives us a glimpse into the normal of the future.
He is slowly working through the eating/oral/sensitivity issues and he has come such a long way from freaking out if something touches his lips or cheeks like he was at 6 months old.
And for this we are so thankful!
Keep it up, little man! We love you so much!